Dr. Natt, director of pediatric hospitalist medicine at Danbury Hospital and Connecticut Children’s regional clinical director for hospital partnerships, diagnosed Tyler with Henoch-Schonlein purpura—an extremely rare disorder affecting fewer than 200,000 individuals per year. The disorder causes vascular inflammation in the skin, joints, intestines and kidneys. One of its identifiers is a purplish rash found on the lower legs or buttocks.
Tyler’s mom was overwhelmed when she heard the diagnosis.
“I was trying to quickly google the disorder, but I had never heard of it, so I didn’t even know how to spell it.”
In short order, Tyler found himself hooked up to an IV and admitted to the hospital. Although he was released after a few days, he wasn’t out of the woods just yet. Because Henoch-Schonlein purpura often affects the kidneys, baseline kidney testing was scheduled and weekly monitoring would be required.